
TMJ4 paid a visit to the Softball Challenge to tell the story of Bridger and Essex.
Check out the story here.
TMJ4 paid a visit to the Softball Challenge to tell the story of Bridger and Essex.
Check out the story here.
Click here for event details.
Ladies and Gentlemen: Start your bidding! The auction is now open.
Bid high and bid often at https://www.32auctions.com/bande2022.
The online auction closes at 8:30 p.m. CT on Saturday, August 13.
We have 18 items up for bid, with something for everyone, from sports fans to foodies to travelers to anyone looking for unique experiences.
The link also includes a preview of the raffle Items that can only be won by attending on Saturday. (You can not bid on them online; you must attend the event to have a chance to win the raffle items shown.) It’s an impressive list of items, including tickets, gear and gift cards.
You can also still register to attend Saturday’s game. Do so here.
All proceeds from this year’s event will go towards funding an actual clinical trial for a cure for INAD. This is a momentous milestone in the fight against INAD. Thank you for all of the continued support.
We are excited to share this announcement! From the INADcure Foundation …
We are so excited to share with our community that The Bridger and Essex Grebe Fund has generously gifted $100,000 to the INADcure Foundation to be used towards our current research initiatives!
The Bridger and Essex Grebe Fund was established by the Grebe family in honor of Bridger and Essex, much-loved brothers who were both afflicted with INAD.
This summer the Fund held their 11th annual Softball Challenge. This year’s event raised more than $50,000 – the highest total to date! In its 11 years, the Fund has raised almost $700,000.
Those dollars have provided scholarships to families for intensive therapy programs, supported genetic research at Children’s Wisconsin, and supported the extensive INAD research efforts of the INADcure Foundation.
What started as the Bridger Stowe Grebe Softball Challenge in 2011 became the Bridger and Essex Grebe Softball Challenge upon the passing of Essex in 2015. What a fun and special way to help other families while celebrating the lives of Bridger and Essex!
To learn more about the Bridger and Essex Grebe Fund visit: https://bridgerandessexgrebefund.com.
We are incredibly grateful that the Grebe family continues to support the INADcure Foundation and our mission to one day eradicate this disease so that our children no longer suffer the devastating symptoms of INAD!
Registration is now open for this year’s event, which is on Saturday, Aug. 14, at Thiensville Village Park, 250 Elm Street. The family tailgate starts at 5:30 p.m. and the game at 6:30.
Cost to attend the event is a $45 donation per adult (21 and older) and $25 for those ages 15-20. Children under the age of 14 are complimentary with an adult donation.
If you cannot attend, you can still donate and get your classic t-shirt. Just follow the same steps below for registration for your shirt, but make sure to include your address.
How to Register and Pay
There are two steps to registering.
STEP 1: Start by clicking on the button below to fill out the registration form.
STEP 2: After registering, there are three ways to pay.
2021 Shirt Options
Register and donate to get one of the beautifully designed shirts!
We are so excited to bring back the Bridger & Essex Grebe Softball Challenge in 2021 — live!
Please mark Saturday, August 14, on your calendars. Tailgate is 5:30 p.m., with the first pitch at 6:30 at Thiensville Village Park.
Look for more information soon.
Our auction and raffle were big successes, and we could not have done it without our sponsors.
Thank you to all of them!
Let’s start with our three major sponsors …
And the list doesn’t stop there. Also thanks to …
With recommended crowd sizes limited due to COVID-19, and due to the closure of Helfaer Field, the Bridger and Essex Grebe Softball Challenge is going virtual this year.
You can still generously donate and receive your limited edition Bridger and Essex Grebe t-shirt — both long- and short-sleeve options are available this year — and we will host an online auction and raffle to benefit the fund.
And there is much more information on the auction/raffle to come.
As always, thank you for your support!
We are proud to have raised more than $500,000 since we started the Softball Challenge, including more than $30,000 this year.
Where does that money go? To find out, check out the letter we recently received from Amanda Hope of the INADcure Foundation, and thanks for your continued support!
From the letter …
I am pleased to report that 100% of the funds you contributed to our Foundation went to support medical research initiatives for INAD. The majority of the funds we distributed in 2018 went to Dr. Paul Kotzbuaer’s Lab at Washington University. As you know, Dr. Kotzbauer is working on gene therapy for INAD. Gene therapy is a revolutionary approach to treating genetic diseases. It involves a one-time delivery of a normal copy of the defective gene which ideally causes the body to naturally produce the missing enzyme, which is what is causing the neurodegeration in INAD. It is the most promising ‘cure’ for our children. …
To date, the INADcure Foundation has raised approximately $600,000. Over 90% of our funding has or will go towards research. We keep our overhead extremely low, as we continue to be run and advised by a working board of directors and multiple advisory committees. We only have one part-time consultant that assists with day to day operations and development. Our goal has always been to direct as much of the funds raised as possible towards research.
On behalf of our entire Board of Directors and the families and children suffering from this heartbreaking disease, I want to thank you again for your support. None of the accomplishments above would have been possible without the generous gift from the Bridger and Essex Grebe Fund.