THANK YOU!

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Cherishing Their Memory by Helping Others

Bridger was born on August 11, 2001. His brother, Essex, was born on January 14, 2008. Both were born with Infantile Neuroaxonal Dystrophy (INAD), a progressive genetic disorder that mainly affects the nervous system and muscles, worsening over time. Children who suffer from INAD are healthy at birth, but begin developing symptoms of the condition by age two.

Both boys passed away from complications related to INAD, though their memories live on, and we celebrate their lives each year with the Bridger & Essex Grebe Softball Challenge. The charity softball game supports INAD research and families with children who have needs similar to those of Bridger and Essex, but who do not have the good fortune we did to be able to afford the life-changing therapy, assistance, and equipment that make such a difference.

2026 Message From The Grebe Family

Thank you again for being part of this year’s Bridger & Essex Grebe Softball Game. Because of you, we raised well over $100,000 for the Fund. And it meant the world to see so many friends and families come together in honor of Bridger and Essex.

Your support is doing real work. We are hopeful the gene therapy drug to treat INAD will receive FDA approval in the next few weeks, a milestone that felt impossibly far away when we first started the Bridger and Essex Grebe Fund. 

We are grateful for every one of you, and consider ourselves incredibly lucky to be part of such a special community. 

We look forward to seeing you again next year!