The story of Bridger Stowe and Essex Hart Grebe is one of hope, strength and courage in the face overwhelming obstacles.
Bridger was born on August 11, 2001. His brother, Essex, was born on January 14, 2008.
Both were born with Infantile Neuroaxonal Dystropy (INAD), a progressive genetic disorder that mainly affects the nervous system and muscles, worsening over time. Children who suffer from INAD are healthy at birth, but begin developing symptoms of the condition by age two.
Children with INAD will exhibit developmental delays and eventually lose skills they previously had, including most voluntary movement and vision.
INAD is difficult to diagnose, and there is currently no cure—only treatment and therapies that can dramatically improve the child’s quality of life.
Despite their condition, Bridger and Essex inspired their family, friends, and others with their courage and resiliency. They loved those around them and their smiles provided true warmth.
Bridger passed away from complications relative to INAD on August 31, 2010. Essex passed away on October 25, 2015.
Their memories live on, and we celebrate their lives each year with this charity softball game.